How Women with Breast Cancer Use the Internet
and How it Affects Their Quality of Life
David H. Gustafson, Robert Hawkins, Suzanne
Pingree, Fiona McTavish, University of Wisconsin
300 women recently diagnosed with breast cancer were randomly
assigned to three arms: 1) usual care plus a book or audio tape
about breast cancer, 2) a computer for five months with access
to and training on using Internet plus URLs for good breast cancer
sites, 3) a computer, access to and training on the web-based
CHESS breast cancer program web offering 17 breast cancer services
and links to other Internet sites. Semi-final results: Women
in the Internet arm used Internet about the same amount as the
CHESS women but quickly moved from health sites to non-health
topics. A pretest plus 2 and 5 month posttests found no differences
between control group and internet arms on the eight quality
of life outcomes studied. The CHESS arm improved over the control
group on six of eight quality of life outcomes. This study raises
concerns about whether giving patients URLs of good websites
(even with training on using the internet) will improve outcomes.
The most important advantage of CHESS may be its closed, guided
universe of information, skills training and support options;
an integrated package where everything points to everything else,
instead of requiring search and discovery of many web sites.
Learning Objectives:
- Describe how women recently diagnosed with
breast cancer actually use the internet
- Describe how those women differ from a usual
care control group in terms of quality of life outcomes
- Describe how women given access
to a comprehensive system of information, skills training
and support improved on quality of life
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